Press

A Dad’s Story

Contact: Susan Selby, Director of Communications2513 White Oak DriveAmes, IA 50014515-441-0324www.holdingtinyhands.com Details:Des Moines, IAMercy Medical CenterEast TowerConference Room 310:30-11:30 The journey that a family takes when they have a child in the Neonatal Intensive Care Unit (NICU) can be very stressful, overwhelming, and challenging. Holding Tiny Hands, a group of NICU graduate parents, knows just how stressful these times are. This group of parents provides several opportunities…

Share Sessions: Parent Advisory Panel

Contact: Susan Selby, Director of Communications2513 White Oak DriveAmes, IA 50014515-441-0324www.holdingtinyhands.com Share Sessions: Parent Advisory PanelDate: December 10, 2011Des Moines, Iowa Holding Tiny Hands will be presenting a Share Session at Mercy Medical Center in Des Moines on Saturday, December 10, 2011. The session will consist of a panel of former NICU parents available for a question and answer period benefitting parents with infants currently in the NICU. During a time when parents…

Share Sessions: Navigating the NICU

Contact: Susan Selby, Director of Communications2513 White Oak DriveAmes, IA 50014515-441-0324www.holdingtinyhands.com Share Sessions: Navigating the NICUDate: November 12, 2011Des Moines, Iowa Holding Tiny Hands will be presenting its first Share Session entitled “Navigating the NICU” at Mercy Medical Center in Des Moines on Saturday, November 12, 2011. The guest speaker will be Mercy NICU Medical Director, Dr. Cary Murphy. The goal of the session will be to support parents and provide information…

RAGBRAI spaghetti feed to benefit families of infants in intensive care

Contact: Susan Selby, Director of Communications2513 White Oak DriveAmes, IA 50014515-441-0324www.holdingtinyhands.com RAGBRAI spaghetti feed to benefit families of infants in intensive careDate: July 18, 2011Boone, Iowa Holding Tiny Hands has partnered with the Boone Masonic Temple to host a Spaghetti Feed Fundraiser during RAGBRAI on Tuesday, July 26, 2011. The RAGBRAI riders and the Boone area community are invited to attend this free-will offering fundraiser. Proceeds will support Holding Tiny…

97% of parents of premature infants suffer from post-traumatic stress disorder

Holding Tiny Hands Foundation has been established to provide support services to families of micro-preemies and infants with chronic health conditions who endure lengthy stays at local NICUs (Neonatal Intensive Care Units). A micro-preemie is a baby born prior to 26 weeks gestation (14 weeks early) &/or with a birth weight of less than 1.75 pounds. Holding Tiny Hands has chosen to expand this definition to serve families of babies born prior to 29 weeks with a birth weight of less than three pounds.…

Holding Tiny Hands Foundation invited to attend Inaugural conference for premature parents

Contact: Susan Selby, Director of Communications2513 White Oak DriveAmes, IA 50014515-441-0324www.holdingtinyhands.com Holding Tiny Hands Foundation invited to attend Inaugural conference for premature parents; National Alliance of Premature Parents created.Date: November 10, 2010Des Moines, Iowa Atlanta, GA, October 24, 2010 – Susan Selby, Executive Director of Holding Tiny Hands Foundation, was personally invited to collaborate with prematurity advocacy programs from across the nation for the first…

A Dad’s Story


Contact: Susan Selby, Director of Communications
2513 White Oak Drive
Ames, IA 50014
515-441-0324
www.holdingtinyhands.com

Details:
Des Moines, IA
Mercy Medical Center
East Tower
Conference Room 3
10:30-11:30

The journey that a family takes when they have a child in the Neonatal Intensive Care Unit (NICU) can be very stressful, overwhelming, and challenging. Holding Tiny Hands, a group of NICU graduate parents, knows just how stressful these times are. This group of parents provides several opportunities each month for families to take time out from the stresses of the NICU and come together for encouragement, strength, and hope from one another. This month on Father’s Day, Bob Selby, a two-time father of the NICU, presents “A Dad’s Story.”

Des Moines, Iowa June 15, 2013 – “A Dad’s Story” is an eye-opening and sometimes humorous account of one father’s journeys through the NICU. Bob Selby will share how his first and second journeys through the NICU with his two sons were drastically different because of the support systems he had in place during each journey.

Each month, Holding Tiny Hands provides meals and educational outreach sessions for families of the NICU. Through these meals and education sessions, parents are able to come together for fellowship with one another during this most vulnerable time as parents. This month, the focus is on the experiences of fathers.

Holding Tiny Hands works to improve the outcomes of micro-preemies and chronically ill infants by addressing the parents’ needs through an established support system of parents who share similar experiences. Please visit http://www.holdingtinyhands.com or follow on Facebook. For more information, please contact Susan Selby, Director of Communications, (515)441-0324 or susan@holdingtinyhands.com.

Share Sessions: Parent Advisory Panel


Contact: Susan Selby, Director of Communications
2513 White Oak Drive
Ames, IA 50014
515-441-0324
www.holdingtinyhands.com

Share Sessions: Parent Advisory Panel
Date: December 10, 2011
Des Moines, Iowa

Holding Tiny Hands will be presenting a Share Session at Mercy Medical Center in Des Moines on Saturday, December 10, 2011. The session will consist of a panel of former NICU parents available for a question and answer period benefitting parents with infants currently in the NICU. During a time when parents are at their most vulnerable, parents assume their role on the sidelines in the NICU, lost in the myriad of tubes, wires, and alarms, and relying on others to keep their baby alive. Holding Tiny Hands is there to help parents find their way. Through our educational outreach, we provide an outlet for parents to share and learn from experts and one another. Education sessions for current and graduate parents provide a continuum of support that allow them the opportunity to gain the information needed to become the best advocates for their children. Our educational outreach is based on the following guiding principles of Holding Tiny Hands:

1. All parents play an essential role in the care and development of their premature or chronically ill infant.
2. Parents in this critical environment need a strong support system.
3. Critically ill infants need a strong advocate.
4. All parents can be strong advocates for their child.

Holding Tiny Hands Executive Director, Susan Selby says “Research shows that parents who are emotionally healthy and have a stable network of support can mitigate the effects of preterm birth. A support network for parents is vital to the outcomes of our babies. Holding Tiny Hands is excited to provide this opportunity for current and graduate NICU parents to come together and learn from one another. This is just one way Holding Tiny Hands works to optimize the outcomes of newborns in intensive care.”

Immediately following the session will be “Meals for Moms and Dads” in the East Tower, 4th floor/ NICU lobby at Mercy from 11:30-1:30.

Share Session Details: Conference Room 1 of East Tower of Mercy Medical Center
Location: Mercy Medical Center, Des Moines, Iowa
Session time: 10:30-11:30

Share Sessions: Navigating the NICU


Contact: Susan Selby, Director of Communications
2513 White Oak Drive
Ames, IA 50014
515-441-0324
www.holdingtinyhands.com

Share Sessions: Navigating the NICU
Date: November 12, 2011
Des Moines, Iowa

Holding Tiny Hands will be presenting its first Share Session entitled “Navigating the NICU” at Mercy Medical Center in Des Moines on Saturday, November 12, 2011. The guest speaker will be Mercy NICU Medical Director, Dr. Cary Murphy. The goal of the session will be to support parents and provide information about the development and care of their premature baby as well as more in depth information regarding the specialized care the NICU provides. Holding Tiny Hands is looking to implement a similar session at Blank Children’s Hospital in the near future. “Holding Tiny Hands is very excited to implement these Share Sessions and to help provide a resource to parents currently facing the daily challenges of the NICU,” says Director of Communications and mother to a 25 week preemie, Sara Lenox.

Immediately following the session will be “Meals for Moms and Dads” in the East Tower, 4th floor/ NICU lobby at Mercy from 11:30-1:30..

Share Session Details: Conference Room 1 of East Tower of Mercy Medical Center, 10:30-11:30 Location: Mercy Medical Center, Des Moines, Iowa Session time:

Holding Tiny Hands provides encouragement, strength, & hope to families with infants in intensive care at Mercy Medical Center and Blank Children’s Hospital. The goal of Holding Tiny Hands is to improve the outcomes of micro-preemies and chronically ill infants by addressing the parents’ emotional and psychological needs through an established support system of parents who share similar experiences. Please visit http://www.holdingtinyhands.com or follow on Facebook. For more information, please contact Susan Selby, Holding Tiny Hands Foundation Executive Director at (515)441-0324 or susan@holdingtinyhands.com.

RAGBRAI spaghetti feed to benefit families of infants in intensive care


Contact: Susan Selby, Director of Communications
2513 White Oak Drive
Ames, IA 50014
515-441-0324
www.holdingtinyhands.com

RAGBRAI spaghetti feed to benefit families of infants in intensive care
Date: July 18, 2011
Boone, Iowa

Holding Tiny Hands has partnered with the Boone Masonic Temple to host a Spaghetti Feed Fundraiser during RAGBRAI on Tuesday, July 26, 2011. The RAGBRAI riders and the Boone area community are invited to attend this free-will offering fundraiser. Proceeds will support Holding Tiny Hands, an Iowa-based nonprofit organization benefiting families of the neonatal intensive care units (NICU) at Blank and Mercy. Special guest, Miss Spring Creek Cassie Ellsbury, daughter of Mercy Neonatologist, Dr. Daniel Ellsbury, will welcome the RAGBRAI riders to a terrific dinner of spaghetti, garlic bread, salad and dessert. Families of NICU graduates will be on-site sharing success stories and photos.

“In its first year, Holding Tiny Hands has provided support to hundreds of families through its Meals for Moms & Dads project,” says Executive Director and two-time preemie mom, Susan Selby. “We’re excited to expand and extend our services to our families who are in desperate need of support during the long journey of the NICU. Former NICU parents provide tremendous emotional support to current NICU parents. We are grateful that Boone Masonic Temple and our sponsors find our cause worthy of their partnership and support.”

Spaghetti Feed Details:
Location: Boone Masonic Temple, 527 Marshall St. Boone, Iowa
Serving times: 3-9pm (or whenever the food runs out)
Menu: Spaghetti, salad, garlic bread, dessert, drink

All proceeds will benefit the programs and services of Holding Tiny Hands and Boone Masonic Temple. We extend a special thanks to the Spaghetti Fundraiser Sponsors: Barilla, Burke, Do-Biz, South Union Bakery

Holding Tiny Hands provides encouragement, strength, & hope to families with infants in intensive care at Mercy Medical Center and Blank Children’s Hospital. The goal of Holding Tiny Hands is to improve the outcomes of micro-preemies and chronically ill infants by addressing the parents’ emotional and psychological needs through an established support system of parents who share similar experiences. Please visit http://www.holdingtinyhands.com or follow on Facebook. For more information, please contact Susan Selby, Holding Tiny Hands Foundation Executive Director at (515)441-0324 or susan@holdingtinyhands.com

97% of parents of premature infants suffer from post-traumatic stress disorder


Holding Tiny Hands Foundation has been established to provide support services to families of micro-preemies and infants with chronic health conditions who endure lengthy stays at local NICUs (Neonatal Intensive Care Units). A micro-preemie is a baby born prior to 26 weeks gestation (14 weeks early) &/or with a birth weight of less than 1.75 pounds. Holding Tiny Hands has chosen to expand this definition to serve families of babies born prior to 29 weeks with a birth weight of less than three pounds. Holding Tiny Hands is organized around the mission of providing a continuum of support to families during their time in the NICU, throughout discharge, and beyond. The goal of Holding Tiny Hands is to improve the outcomes of micro-preemies and chronically ill infants by addressing the parents’ emotional and psychological needs through an established support system of parents who share similar experiences. This support system builds a network for parents and provides links to community resources that assist parents with the care and development of their premature baby and also with the care of the parents’ emotional and psychological health. The healthier the parent, the better the parent can advocate for their child.

In honor of Prematurity Awareness Month in November, Holding Tiny Hands will be launching its new website: www.holdingtinyhands.com. Information can be found there about support services and volunteer efforts. Many opportunities are available to volunteer with Tiny Treasures Gift Baskets, Meals for Moms & Dads, family support groups, and playcare groups. Parents and grandparents of former micro-preemies or infants with chronic health conditions who are interested in becoming involved are encouraged to check www.holdingtinyhands.com or contact Susan (Penisten) Selby for more information.

Holding Tiny Hands is also available for speaking engagements. “The Preemie Experience” shares the story of a mother of two micro-preemies and the inspiration behind Holding Tiny Hands. Included in “The Preemie Experience” is our foundation video which portrays life in the NICU from the perspective of the parents. This is an excellent way to get to know the Foundation’s mission and the families it serves. Those interested in booking a speaking engagement are encouraged to check www.holdingtinyhands.com or contact Susan (Penisten) Selby for more information.

Holding Tiny Hands is a 501(c)3 nonprofit, incorporated under the laws of the State of Iowa, and will be implementing the Iowa Principles and Practices for Charitable Nonprofit Excellence. All services are supported by funds obtained through grants and personal donations. Contact: Susan (Penisten) Selby, Chief Executive Officer 2513 White Oak Drive Ames, IA 50014 515-441-0324

Holding Tiny Hands Foundation invited to attend Inaugural conference for premature parents


Contact: Susan Selby, Director of Communications
2513 White Oak Drive
Ames, IA 50014
515-441-0324
www.holdingtinyhands.com

Holding Tiny Hands Foundation invited to attend Inaugural conference for premature parents; National Alliance of Premature Parents created.
Date: November 10, 2010
Des Moines, Iowa

Atlanta, GA, October 24, 2010 – Susan Selby, Executive Director of Holding Tiny Hands Foundation, was personally invited to collaborate with prematurity advocacy programs from across the nation for the first ever Preemie Parent Summit. Twenty-seven participants, all parents of preemies, left the weekend as the founding members of the unofficially titled National Alliance of Premature Parents (NAPP).

Richard and Keira Sorrells, co-founders of the Zoe Rose Memorial Foundation, saw a need for a national collaboration as they worked to spread their message of parent support advocacy. “We were honored to facilitate and host this historic event. The group we assembled represented twenty-four support organizations from thirteen different states. We were all united by a passion to help other parents that was born out of one of the most traumatic like experiences – having a premature infant. These twenty-seven parents are doing tremendous things for families to help support and advocate for premature infants at the ground level. What struck us was the common echo among parents in the NICU that they can not find the resources they need to succeed equally at home as they do while in top flight NICUs across the country. Richard and I knew there had to be a better way to unite all of these organizations to not only raise the profile of each individual group, but to collaborate in an effort to create a collective voice for parents of preemies. All of us have a common goal of helping other preemie parents, but none of us can do it all for everyone and do it well. By coming together, we can.”

NAPP will facilitate collaboration between parent support groups in all 50 states, including Holding Tiny Hands. Founders Richard and Keira Sorrells anticipate the communication between many strong and instrumental parent support programs across the nation sharing best practices will enable each program, including Holding Tiny Hands, to be strengthened in their community approach.

Selby of Holding Tiny Hands feels honored to be part of such an unprecedented alliance. “NAPP epitomizes a pillar of Holding Tiny Hands: Forming a strong united front as we advocate for our children.” holdingtinyhands.com (515)441-0324 susan@holdingtinyhands.com